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Epidermolysis Bullosa
March 3, 2010 by ru30
Epidermolysis Bullosa, or, EB is a rare genetic skin disease that most people have never heard of but almost 100,000 have it. People who have this have to were bandages because there skin is so sensitive and fragile. If someone with EB got a bad cut or bad burn it might never heal. Also the slightest blister can cause the skin to break down.
The cause of this disease is that the skin can’t produce a glue like material called collagen-7. Collagen-7 binds the skin together so it doesn’t break.
Kids with EB usually live pretty short lives because it is so easy to get infected very easily. Also they are always in pain and they are rapped in bandages all the time.
This is a 12 year old boy named Garret who has the disease EB.
This is a 12 year old boy named Garret who has the disease EB.
Posted in Uncategorized | | | 7 Comments
7 Responses to ' Epidermolysis Bullosa '
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on March 3rd, 2010 at 4:36 pm
Raili,
This is so sad. All of the diseases you’ve written about are horrible, but, for some reason, this one REALLY saddened me. I feel awful for anyone who has this.
Here’s a link I found that might help answer more questions regarding this.
http://www.niams.nih.gov/Health_Info/Epidermolysis_Bullosa/epidermolysis_bullosa_ff.asp
The part about genetic counseling is most interesting to me. Being that this is hereditary, if this is were in my family, somewhere, I’d want more information regarding the likelihood of this coming up in the future.
on March 12th, 2010 at 7:28 pm
Raili,
I agree with Mr. H. This is horrid. Our skin is our largest organ. If it can’t protect you, life must be excruciating.
I think your topic is fascinating. Keep at it, girl. People are diagnosed with all sorts of things that those of us who generally enjoy good health are unaware of.
Be grateful!
on May 26th, 2010 at 9:53 am
I feel so bad for this kid. I would hate to have this desease. I feel so lucky after watching this video that I don’t have a desease like this. I just feel so bad for this kid.